The association was founded in 1993, as an organization for persons with the eye disease retinitis pigmentosa (RP), and their relatives and close friends. The organization has some 750 members, from all regions of Norway. The purpose of the organization is to disseminate information about the disease and the ongoing research, to the members and relevant professionals in Norway, and to support research on inherited retinal diseases.
The annual activities include two major conferences, aimed at the members. The spring conference is combined with the General Assembly, which elects the board and approves the budget for the coming year. The conferences are thematically concentrated around new research, rehabilitation issues, strategies for living with RP, and other relevant activities. Occasionally, regional or youth conferences are also arranged.
